My friends and I were playing a card game this weekend in which one of the questions was “Who’s life will be different in the next five days?”. It made me think about how much of the health of an endometriosis patient depends on finding the right doctor and receiving the right treatment. I have an appointment with a specialist and god-willing my life will be different in the next five days. It’s weird to be pray that some stranger will be educated enough and care enough to cut me open to determine if I have endometrial tissue growing in the wrong places and get that out of my body asap. It’s unnerving to feel like the rest of my life hinges on someone else.
So what can an endometriosis patient do to put the power back in her hands? Become as educated about their condition as possible! While there is no cure for Endometriosis there are treatments out there that are better than others and ways that you can assist your health. Having a surgeon who can get it all from the beginning means less surgeries and less scar tissue creating adhesion that can can complicate issues even further. Many regular gynos do not have the experience or the knowledge to spot all the different types of endo or know where to look.
My first step after my gyno told me I probably have endo (after I freaked out for a week of course) was to learn as much as I could about it which is no easy task.The internet is chock full of women still in pain and suffering everyday. It’s hard to keep up a positive spirit when others in my position are still in tremendous pain with no respite in site. I have to remember that I am different and I can only do all that I can to heal myself. Once I felt like I knew as much as I could from the internet I stopped reading all the posts because it can get pretty depressing after awhile. I bought the highest rated book off of Amazon called Stop Endometriosis and Pelvic Pain by Andrew S. Cook MD. It was incredibly insightful and helpful. It outlines how to find the right doctors and gives you the right questions to ask. It helped me feel like at least some of the power was back in my hands and right now that is my bright light at the end of a dark tunnel.
Hopefully, I’ll have interesting and positive updates soon!